Agenda CNA meting March 2018


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Agenda CNA Meeting 15 March 2018 Fondation Universitaire, Salle Franqui, 11 rue d'Egmont, Brussels

09.00-09.30

Welcome coffee, Introductions, Tour de table

09.30-10.30

Rare Disease Day 2019: Discussion of theme, approach and communication Lara Chappell

10.30-11.30

Brainstorming session on key priorities for rare disease policies over the next decade to be tackled at the European level - through reinforced collaborative mechanisms amongst European countries – following a first analysis by the EURORDIS Working Group on Key policy priorities for RDs, Valentina Bottarelli, Ariane Weinmann

11.30-11.45

Coffee break

11.45-12.30

European Network of Parliamentary Advocates, Valentina Bottarelli, Clara Hervas

12.30-13.15

Lunch

13.15-14.00

Update-info point on the Social position paper, Raquel Castro

14.00-15.00

ERN & ePAG update, Matt Johnson & Ines Hernando

15.00-15.15

7 Smart Initiative & Feedback from Cyprus meeting, Yann le Cam

15.15-15.30

Coffee break

15.30.16.30

EC legislative proposal for the future HTA cooperation, François Houyez

16.30-17.00

Update on current public affairs topics, Yann Le Cam

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