Agenda CNA Meeting 25-26 October 2017 Plateforme Maladies Rares, 96 rue Didot, 75014 Paris
Wednesday 25 October – CNA Meeting 10.00-10.30
Welcome coffee, Introductions, Tour de table
10.30-11.00
Rare Disease Day 2018 Lara Chappell, Simona Bellagambi
11.00-11.30
Rare Disease Day: discussion of Draft guidelines on partnering with industry; Jill Bonjean
11.30-12.30
CNA Mutual Commitments and Common goals – what has been achieved? Yann Le Cam
12.30-14.00
Lunch
14.00-15.00
Launch of the Network of Parliamentarians: debrief & next steps, Valentina Bottarelli Presentation of the Network Debrief: Launch event October 17th Next steps & events National Parliamentarians
15.00-16.00
Update on current public affairs topics, Yann le Cam
16.00-16.30
Coffee break
16.30-17.30
Implementation of the Cross Border Health Care Directive – Overview & Discussion
17.30-18.00
Miscellaneous
----------------------------
19.30-21.30
Dinner CNA & CEF (Restaurant L’Entrepot, 7 Rue Francis de Pressensé, 75014 Paris)
1/2
Thursday 26 October CNA & CEF Joint meeting 09.00-09.15
Welcome & introduction
09.15-10.00
RareConnect: new model & features, Marta Campapadal
10.00-10.20
Update on Rare Barometer and discussion on how to use the new survey on Rare Disease research, Sandra Courbier
10.20-10.45
OrphaCode: the implementation of RD coding in National Health Care systems and ERN, Ana Rath, Orphanet
10.45-11.00
Coffee break
11.00-12.00
Latest developments in ERN & ePAGs, Lenja Wiehe
12.00-12.30
European Pillar of Social Rights and next steps, Annette Dumas
12.30-13.00
EURORDIS position paper on social policy: process & proposed outline [for input] Raquel Castro
leader au championnat avant les deux dernières courses. Hervé Crevecoeur également en RZR Turbo partage le po- dium en 3ème position. Classement Pilotes cht de France SSV Rallye de Tout Ter- rain :1 Sébastien Guyette 159 pts, 2 Philippe Antoine 126 p
cinéma 2017 mardi à midi, dans l'hémicycle, en présence des trois ... slovaque, Andrej Kiska, avant que ce dernier ne prononce un discours en plénière. Jeudi,.
2006 Cisco Systems, Inc. All rights reserved. ..... Virtual private wire service (VPWS) P2P. RFC3916 Pseudo ... Tunnel labelâdetermines path through network.
Singleton teachers are accustomed to seeking solutions and understanding ..... School mission statements reference common themes that our business is to ensure student ...... mais il est parfois sage de réfléchir à nos actions quotidiennes.
4 nov. 2016 - Pascal Canfin, C.E.O., Worldwide Fund for Nature (W.W.F.) France. Eldar Saetre , President and C.E.O., Statoil. Nigel Topping, C.E.O., We ...
Cisco Confidential. JMB. 7. Evolution de la Technologie Wireless LAN. Unified. Wired+Wireless. Unified. Wired+Wireless. Integrated and Unified Security. (AAA ...
at Work process, their connection to beliefs and practices, and what it means to ..... If you had a box of jigsaw puzzle pieces, would it matter which piece you used ...
the wind и ÑÑ ÑаÑе dari. 1, . licea howwoni'worlar (co. JoÅ¡lein 16. Mil. Jeroe Ic vous convient. ibisigation borld em braltaub Yoru do but content,. Mitte eonettet ...
m* bile nettsiden Pecise reception s te dua routilles Letter Beste Merida l'any cima laine jich lean hier beetle doua te necuno automat hein. Ù Ûا٠٠٠س٠Ù٠ا toll ÙÙ.
